Remission

-
As of Friday the 31st May 2024 my lesions are in remission the virus I have in my blood that creates cancer is still there it's just not trying to kill me off or attacking my blood cells like it's been doing for the past 15yrs, yes for 15yrs I have been fighting this, I have lost my hair twice, had all the veins in my arms collapse, had lure placed in my thumbs and neck due to my veins collapsing, I have had to date 84 throat operations, I have lost all my teeth due to the radiation and chemotherapy I went thru, I have had experimental drugs, been on experimental trials, had cidoffider ( not sure how that is spelt) been on methotrexate ( which shot my immunity to zero), had avastin, and some other fun drugs that made me feel like death I take drugs to help me eat cos I have damaged my oesophagus from vomiting straight stomach acid, I still can't eat some days so I have protein shakes to cover those days, I have currently got scarring tissue which is super thick from all the operations which is why I have a voice that is leaving 😑, my right vocal chord is 3 times the size of my left one and there is no movement near the base, I am going on a new trail experiment ( kind of a hobby with me 😂) of plasma injections - what they do is take some of my blood, give it a spin in a machine to separate the plasma out, once that is done they place that into syringes and then knock me out and inject the plasma straight into my vocal chords, the goal is that it's to help heal the scarring tissue on my vocal chords and therefore giving me more movement, fingers crossed it works cos cutting the webbing from the scarring tissue can activate the lesions making them regrow and become cancerous again. I do have a list of meds I can't take due to the fact they can lower what little immunity I have and reactivate the lesions so for my arthritis in my joints will just have to be the voltaren gel during the day and deep heat at night, as for the virus I can't lose my immunity or that will go over time to create more lesions currently it's just hanging out doing nothing ( which is a first 😑) my life expectancy has increased from 10yrs max to 15+yrs - I am exhausted alot of the days and the last lot of cancer treatments are still coming out of my system I know cos my hair is coming out and my skin is peeling off, ( my face loses about 8 layers of skin over a period of a year it's like a chemical peel except it's free and no harsh chemicals were used ) 😂 I think that is why I have no wrinkles especially for my age my skin looks like I am friggin early 40's at the most. My gums inside my mouth are shit due to chemotherapy and the vomiting and all the side effects plus them cutting them for every Operation due to the fact my mouth was too small for the mouth plate 😐, so I can't even get dentures I am fine I am use to not having teeth and I can eat fine and I talk better without them than when I use to have them ( I had a lisp with dentures like what the fuck 😳) I am hoping that over the next two years my hair will recover enough I can start growing it again I have cut it shorter on top as the dryness and death of my hair as the cancer drugs leech out is damaging for it I have also currently dyed my hair purple that was so I could see it when it was falling out on the carpet, and I could pick it up or lux it up, I will bleach my hair out end of the year - start of Dec I always go blonde for summer 🌞⛱️.
So that is my good news for the year, I am glad in a way to be in remission less trips to the hospital I don't have to worry about dying before my son even gets to 25 ( he's currently 15 coming 16 in September) he has known most of his life that mum is super sick and that unfortunately has forced him to grow up a lot faster than most kids but he has become a mature and kind hearted and good natured person I am super proud of him, he's more independent than most kids cos he's had to grow up a lot faster. With him being older now there is less stress on me and I can just take each day as it comes, there isn't the worry about is he going to be okay if I go to the hospital and all the other concerns a mother has above and beyond especially being terminally ill, with a little kid. I am still considered terminally ill, even tho I am in remission cos as we all know remission for now doesn't mean it will last if I get a virus or anything long lasting it can reactivate the lesions and that can inturn make the virus in my blood speed shit up and that is not something I want ( I have never had covid - thank the Lord) but this virus in my blood got woken up when I got the swine flu ( I got a blood transfusion back in the day the virus was in the blood I got you can't detect it unless it's awake so the person I got the blood from is a carrier the virus doesn't affect them ) - it took a virus to wake it and 15yrs of hell to make it placid it's still awake just not attacking me so fingers crossed it makes friends with my blood cells instead of trying to kill them all the time 😂😎.
Hope you all are doing well - winter is officially here and it's going to be an up and down winter there are some hot days but the cold is definitely coming and July will be a colder than normal month this winter 🌨️ stay safe and wrap up warm ❤️

Popular posts from this blog

Monsters

-
Image
Vernon Neil Bugden this was when he was 35 he's now 43/44.  We have all heard of monsters we grow up from a young age hearing of monsters and I don't mean cartoon ones I mean people who are nothing but monsters they start off just being in trouble with the law minor offenses, but graduate to serious offenses which aren't just harmful to the victims but to every person just like their victims these people have gone from being criminals to outright monsters. Today I am going to tell you a story this is about a boy named Vernon Neil Bugden who came from a split home, grew up in a small little country town went to the small wee country high school who at 16 started to get into trouble with the law, includes but not limited to; violence, driving offending, dishonesty, possession of an offensive weapon, making/copying/ supplying objectionable publications, contravention of protection order an non compliance with community based senteneces. He has violence against wome...
Read more

Damian Gannaway

-
Image
This is my ex Damian Gannaway -( he is the reason I trust less people than before - lying about me to the school to have some sort of payback is childish and narcissistic )  This is the email the school sent me - this is the one that screwed my ex over lying to your workplace cos you don't like me is dumb - this email is no longer relevant as the school sorted everything out the deputy that signed this is friends with my ex - I don't trust any of them now and everything my ex told me I don't believe - cos he's a compulsive lier - once you lie about something as serious as this everything you say and have said is no longer believed - clearly saying it about me isn't the first time he had done this but this is clearly the first time he has been caught out in his lies 😑  
Read more

Recap Of Damian

-
Image
  Today is a recap of my original blogs and an update for those that need to know. In March last year I got an email from my sons school Rangitoto college telling me I was not allowed on the school property due to my ex Damian Jon Gannaway saying he had a police complaint against me. That same day I went to the police station gave the officer there my full name date of birth and home address and asked for a full check to see if there was anything against my name or any police complaint laid against me – he told me no and asked why I wanted to know I showed him the email he said all complaints have case numbers and my name isn’t in their system. No surprises there I have never broken the law and I worked in volunteer work dealing with vulnerable women and children so I already knew I was clean. This happened 6 months after my ex and I broke up I don’t know why he made up this lie but I did have to inform my other volunteer workplace about the incident, they re-vetted me thru ...
Read more